At the heart of all medical advances are clinical trials, which are part of clinical research and help determine if a new test or treatment works and is safe. People who participate in clinical trials have contributed greatly to the knowledge of how we treat cancer and have influenced healthcare policy. Clinical trials can also help with other aspects of care, such as improving a patient’s quality of life.
At Shore Cancer Center, we are currently looking for patients or caregivers who would like to help researchers uncover the emotional, physical, practical, and financial impact of cancer and identify unmet needs. This Cancer Registry Experience clinical trial is an online research study that involves a 35-minute survey. Sharing important insights can help the Cancer Registry Experience create better outcomes for future generations.
While there is much to learn, the findings from the Cancer Experience Registry have already helped inform the development of supportive care and education in areas such as:
- Distress screening and referral
- Quality of life and financial burden
- Understanding cancer clinical trials
- Treatment decision-making
- Managing the symptoms and side effects of cancer and its therapies
- Policy and advocacy efforts to address the rising costs of cancer care and their associated burden
The Cancer Registry Experience study includes questions about quality of life, quality of care, and access to care. It will also ask for a diagnosis. The survey is an Institutional Review Board (IRB) approved research study, which means that confidentiality, rights and welfare of participants is protected.
Out of respect for time, participants are welcome to stop the survey at any point and finish at a later time. An email is automatically sent with a link to exactly where you left off.
Those who participate will be invited to take part in follow-up surveys or other research and programs applicable to the study. For follow-up surveys, there may be monetary compensation for participation. To begin the trial survey, please visit this link: https://www.cancerexperienceregistry.org/shoremedicalcenter.
For more information, contact Kimberly Kaczmarski, Manager of Radiation Oncology at Shore Cancer Center at 609.653.3896.
References:
Welcome to the Cancer Experience Registry. (2023, August 7). Retrieved from Cancer Support Community: https://www.cancersupportcommunity.org/registry
Websites:
https://classic.clinicaltrials.gov/ct2/show/NCT02333604
https://www.cancersupportcommunity.org/registry
